Comments on: Well hello there internet http://www.crapivemade.com/2010/04/well-hello-there-internet.html Tue, 08 Jan 2019 15:20:29 +0000 hourly 1 https://wordpress.org/?v=3.9.40 By: Cosima Revival Review http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-69732 Thu, 01 Aug 2013 22:40:47 +0000 http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-69732 Great site you have got here.. It’s difficult to find quality writing like yours these days. I truly appreciate people like you! Take care!!

]]> By: Spiral Dyed Downunder http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6836 Sun, 16 May 2010 00:41:30 +0000 http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6836 Hi, just found your blog and read about your little boy. I have a 9yr old girl with a similar condition, but not the same. Hers is an anxiety that prevents her from eating when it is bad. We spent part of last yr in hospital just medically stabilizing her weight. Some babies are born with ultra sensitive neural pathways, and filters that don't filter out the 'junk'. This my daughter's problem, and your little boys. His world will be scarey and overwhelming I am sure. So no wonder he is challenged just living in our world. We have been in therapy for over 18 months, but the best help Belle has received was from my own self education. I highly recommend
The Brain That Changes Itself: Stories of Personal Triumph from the Frontiers of Brain Science (James H. Silberman Books) by Norman Doidge. It explains the function of that part of the brain that doesn't filter and also gives you the most up to date treatments. You have a computer program called Fast Forward developed in the US for purchase which has had amazing results on kids the same as your son. Check it out. The main thing I learned is to ask for help, because I couldn't manage Belle with out others chipping in. Most days now are good, some are awful, but most are good and I believe that these kids will ultimately be stronger because they have faced challenges early in life and they do overcome.

]]> By: Josh, Lindsie, and Ava http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6476 Fri, 07 May 2010 03:21:20 +0000 http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6476 My daughter was never diagnosed with a specific sensory disorder, but she was diagnosed with low muscle tone and with that came A LOT of sensory issues. We have done two separate listening programs multiple times and have LOVED them and seen a lot of success in using them. She also has an occupational therapist who taught us brushing techniques and joint compressions. She also encouraged us to use a sensory box as well as having her wear a back pack with weight in it to help her understand where she is in space. It has been an amazing experience and we have also learned that there are just some things that will always really bother her and that is just part of who she is and rather than changing it we just go with it. She hates socks so she rarely wears them and we just decided its not worth the fight. Thank you for asking this question. I have loved reading all of the responses and have a few new things I am excited to look into as well.

]]> By: The Schaefers http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6475 Thu, 06 May 2010 22:10:20 +0000 http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6475 Our son was diagnosed with SPD at 18 months. We did the local Birth-3 program for occupational therapy and other therapies he needed. He has since been diagnosed with PDD-NOS and is very high functioning, but now that is he almost 3, he will not be in the birth-3 program. We had he referred for preschool through the school district where he'll receive all of his services for free. I would look into your school district for preschool to see what services he'd qualify for.
Also, the OT did the brushing technique, the sensory toothbrush, the deep compressions as mentioned above. She also makes him wear weights around his arms and legs for an hour on and off all day, especially if we go somewhere in public to help him focus. We also have to swing him upside down and like an airplane (which he hates!) since he can't process in those positions. She does a "sensory sandbox" full of noodles and fun toys to play with. Play-Doh is also great, shaving cream, etc.
Books we liked are the "Out of Sync Child" and "Raising a Sensory Smart Child." They give good tips to do your own therapy while you are waiting.
Good luck! Boys are tough to focus anyway, especially with SPD! Just be consistant with what works for him.

]]> By: Cory Jill Syd and Brenna http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6457 Tue, 04 May 2010 19:15:04 +0000 http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6457 A friend sent me a link to this post. My little girl is 4 (5 this summer) and has SPD and anxiety. She was diagnosed just as she turned 3. She had a summer FULL of OT including the listening program at home. Both were lifesavers. Then she started preschool. Also life-changing for her. I wrote a long letter to her teachers explaining what we knew, offering suggestions for potential trouble spots and was very involved in her classroom. She did great. She is now at the end of her 2nd year of preschool and is reading. Kindergarten scares the crap out of me, for next year, but I know that with her mom to advocate for her, she will go places in life. Hang in there! IT's a wild, but ultimately fulfilling ride.
My blog is http://www.bloomon.net I've had quite a few posts much like yours over the last couple of years.
Hope all this helps. Hugs,
Jill

Here are some good links…
http://www.sensorysmarts.com
http://www.sensory-processing-disorder.com
www. spdfoundation.net

Books –
Raising A Sensory Smart Child by Biel and Peske
Out of Sync Child
Out of Sync Child Has Fun
Sensational Kids: Hope and Help for Children with Sensory Processing Disorder by Lucy Jane Miller and Doris Fuller
Answers to Questions Teachers ask about Sensory INtegration by Jane Koomar
Parenting a Child with Sensory Processing Disorder by Christopher Auer

]]> By: Rachelle http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6437 Mon, 03 May 2010 14:50:51 +0000 http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6437 You have my hugs! You know that my sweet Camden has the same thing. He too has not been treated by the school district because he is too "educationally advanced." We haven't sought treatment because we are too poor. LOL! So we just do research and create a sensory diet of our own. If you want somebody to talk to or information on what we have found works for Cam, let me know. Prayers to your family.

]]> By: M http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6434 Mon, 03 May 2010 05:06:15 +0000 http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6434 I have found the book, The Highly Sensitive Child by Elaine Aron very very helpful. : )

]]> By: Mom of three http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6431 Mon, 03 May 2010 02:53:18 +0000 http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6431 When my son was 10 months old I knew something was wrong. He was my first (of 3). Everyone told me he was fine. Even the pediatrician. At 19 months old he was put into a county special ed early intervention program for autistic children. Turns out he was not autistic or on the spectrum… he is blind! The reason I had to comment is that through all the programs my son was involved in I met some absolutely wonderful women with special needs children. My best friend has an autistic son the same age as my blind son and we a quite the circus when we went go out shopping with all four of our kids! It really helped when either of our children had a "meltdown" in a store to have that kind of support. You are brave (and smart) to open up in your blog. I wish I had been writing and reading blogs back then. Meet other moms locally that are dealing with this (there are many more than you could imagine out there) and network!!! I cannot stress this enough. You will learn valuable info on local info regarding OT and Speech and all the other services (including the not so good therapists). I went from crying everyday to being the mom that will approach other moms in the park that may have a child with different needs. I can honestly say I haven't cried about my sons disability in over a year! I even printed up business cards (calling cards, whatever you call them)to hand out. I've made such amazing connections. Oh gosh… I have gone on and on. I hope this helps. Oh, and I love making crap too!

a friend, Sascha

]]> By: Stefan http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6427 Sun, 02 May 2010 13:59:51 +0000 http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6427 There is more and more research that links many learning and developmental difficulties to poor communication and synchronisation between the two brain halves. An effective way of improving the processing functions in the brain is to listen to specially altered sound or music through headphones as pioneered by Dr. Alfred Tomatis (Tomatis method) and Dr. Guy Bérard (Auditory Integration Training – AIT).

Now there is a new Sound Therapy Programme which has been specifically developed with the aim to improve sensory processing, interhemispheric integration and cognitive functioning and it is entirely free to download and use at home. It has helped many children and adults with a wide range of learning and developmental difficulties, ranging from dyslexia, dyspraxia and attention deficit/hyperactivity disorder to sensory processing disorders and autism. It is not a cure or medical intervention, but a structured training programme that can help alleviate some of the debilitating effects that these conditions can have on speech and physical ability, daily behaviour, emotional well-being and educational or work performance.

Check out the Free Sound Therapy Home Programme from Sensory Activation Solutions. There is no catch, it's absolutely free and most importantly often effective. Find it at: http://www.uk.sascentre.com/uk_free.html.

]]> By: Lisa http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6426 Sun, 02 May 2010 11:46:23 +0000 http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6426 ((((HUG)))) Don't give up hope. My daughter had SID since she was 1and with therapy and working through the out of sync child books she has come so far. She's now in 1st grade and has very little problems. Hang in there and take it one day at a time.

]]> By: j http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6424 Sun, 02 May 2010 01:28:44 +0000 http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6424 All I wanted to tell you is this: I've been there and (still am) know how it is… and love is what makes it all worth it/better/count/etc… :) Share the love :)

]]> By: hazelmitziandme http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6422 Sun, 02 May 2010 00:00:49 +0000 http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6422 You will be stunned at how much the will therapy help. Two years ago my then 6 year old saw an OT for SID. We both grew so much. She learned how to manage herself better, we learned how to help her manage herself better. I personally have been pushed to limits of patience that I never knew I had….You will, as a family grow in the most amazing way because of this…really!

]]> By: Casey http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6421 Sat, 01 May 2010 22:13:32 +0000 http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6421 Wow, you really sparked something in all these people to get such responses. I hope they helped. I will never say Paige is a nightmare again..(even though she is)!

You are the perfect Mom to handle him. You find the humor in everything! GOOD LUCK…we are thinking about you!

]]> By: ringmaster http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6417 Sat, 01 May 2010 16:23:17 +0000 http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6417 hi my son is 9 and has asperger's but long before he was diagnosed with it his was diagnosed with SPD. we have done a listening program by vital links and it did wonders but you really have to stick to it. i would recommend it. the school provides my son with occupational therapy. have you tried taking him to the school district to be evaluated he may qualify for services. i know how expensive therapy can be. we bought a trampoline and have 2 different swings. we have also done the brushing. we try everything and if it doesn't work move on to the next. but what has worked best for us is to follow the same routine in the morning and it gets the day started out right. my son is in gymnastics because it is a cheaper version of OT and swimming….anything that involves deep pressure is very calming to my son. as he gets older he knows what he needs to do to calm himself down or organize his system. we also did something called how does your engine run. they have a website for it if you google it. sorry for the ramble but trying to type before i need to feed these 3 kids of mine. leave me a message if you want anymore info i would be happy to share!!!
heather

]]> By: Lesley http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6413 Sat, 01 May 2010 14:19:25 +0000 http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6413 Hi, I stumbled across your blog (because I like all the 'crap you make', haha) and I saw this post. I have a 4 year old who has a significant hearing loss and is also in a constant state of testing for everything else out there from Autism to diagnosis I have never even heard of. It seems there is always something going on with him. The comment of how he makes you laugh until you cry is the exact same way I feel about my sweet Collin! So I kept reading and I was able to relate to most of what you said. I also started a blog a couple years ago about him, mostly it was cheap therapy, :) but two I felt I needed people to understand "this is just how he is". On the outside you wouldn't know anything is going on, unless you witness an 'over stimulated' moment in the store and then I too get the looks and comments about a better schedule or more routine or yada yada yada. I have spent many moments crying in my car too!!! Anyhow, I don't have any advice or words of wisdom for you but I sure want to tell you that I understand and there is someone out there praying for you and won't ever judge you!!! Enjoy your sweet boy, he is one blessed little boy to have you as his mother.

]]> By: Dorrie http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6411 Sat, 01 May 2010 13:57:15 +0000 http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6411 What everyone above has said is true early intervention will be both your and his saving grace. I too have a son who falls on the Autistic Spectrum and emotional breakdowns were very much a part of his young years~he's 11 now and the outburst have all but stopped. It takes work, time, more love than you can muster, and dedication to the wonderful child you brought into this world. There is help available~call your local school district for referrals, pediatrician, and check through the support group listing~attend a meeting you'll find a great deal of help there. I'm so sorry for the mean lady in the store, there needs to be more empathy in the world. Hugs and my best thoughts are with you.

]]> By: valentinegirl http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6410 Sat, 01 May 2010 12:37:56 +0000 http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6410 My son has autism and has some sensory quirks as well. There is no way that you should have to wait long to get an evaluation. Any pediatric occupational therapy group should be able to get an eval done and start doing sensory based OT. I would google pediatric OT and your town and see what you come up with. Best wishes and hang in there. Also, have you seen a developmental pediatrician. Not to be too nosey, but if your child has any language or social problems, you may want to consider that your child has an Autism spectrum disorder(ASD). Even if your son is not on the spectrum, local Autism support groups may be able to help you find resources for evaluation and therapy—again google it for your town.

Also google sensory diet–a sensory diet is just a series of sensory input things that can help your child regulate himself. Things like jumping on a mini-tramp, wearing pressure garments, weighted blankets, ect…

]]> By: Goodwin Family http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6409 Sat, 01 May 2010 03:34:35 +0000 http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6409 http://www.beyondplay.com is a catalog that has LOTS of sensory type toys and activities you can order…some luck pretty fun! :)

]]> By: Goodwin Family http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6408 Sat, 01 May 2010 03:29:22 +0000 http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6408 So I didn't read through a;; 62 comments before me, so maybe I'm being redundant, but there's lots of good sensory books out there. "The Out of Sync Child" is one I recommend to families I work with. There's also another one called "Too loud, too bright, too…" something like that anyway. Is he sensory defensive? Or does he seek sensations? Have you looked into private occupational therapy? Check to see if your insurance would help. An OT can help set up a "sensory diet" (no not food diet, a diet to "feed" his sensory system) so that his sensory needs are getting met and he can be at a comfortable equilibrium. Feel free to email me if you have any more questions. kimbersuu at yahoo dot com

]]> By: Girl from Pennsylvania http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6406 Sat, 01 May 2010 01:03:09 +0000 http://www.crapivemade.com/2010/04/well-hello-there-internet.html#comment-6406 I haven't been reading for long, but I wanted to pass along an awesome blog. http://www.amalah.com She is absolutely hilarious and her four year old son has SPD and a few other things that I am not completely sure about. She has blogged so openly and honestly about it and I am sure that there are probably dozens of posts that may help you. I hope that this helps.

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